I am sooo tired today. Yesterday I managed to get so much done in the way of errands but now I am paying the price. I got my presciption filled (had to wait 20 minutes for it...standing), called in to my local CAB to set the wheels in motion about an appeal for DLA, did a small amount of shopping, called in the bank and then popped into son and daughter-in-laws. All this took me about 3 hours and was so drained when I got home. A long soak in the bath and an early night should have seen me OK.....not so. I didn't get up until 3.30 this afternoon and am ready for bed again.
I received my appointment for the endocosopy today. 4th of March and I have to stop my medication for 2 weeks before..that's going to be fun..NOT!!
The weather here is bitterly cold. No snow for our region yet but there's still time. As it has turned so cold I put the central heating on, and guess what?....no hot water! This was supposed to have been rectified a couple of weeks ago but as I haven't had the need to have the heating on I didn't realize. Will have to report this to housing association repair department again.
Some of you may have noticed a new link in the link list. It sends you to a site specifically set up for a template for an evelope card which has been designed by 2 very talented members of the Imag-e-nation craft site. All the proceeeds go to charity...so all you crafters out there...check it out, you wont be disappointed!
My place to express my thoughts and ramblings on my life as I see it now....12 years on from a diagnosis of PVFS (Post Viral Fatigue Syndrome)....M.E.
Friday, 1 February 2008
Monday, 28 January 2008
Got a new one...
I couldn't find my old counter...so I got a new one. Hope this one decides to stay a little bit longer. It's started from the beginning so it's not strictly accurate.
Saturday, 26 January 2008
Where is....
OK....who's pinched it? My free site counter has gone missing. If you know where it's gone I would be grateful if you would let me know. I don't like things going walkabouts without telling me.
More tests....
This week has flown by without me really knowing what day it has been. I managed to get to see a doctor on Wednesday afternoon. He prescribed me some stronger painkillers much to my relief. The back and shoulder pains are still there but a lot more bearable now. I have at last been able to get some much needed sleep. A bit too much sleep perhaps..I haven't been up and about much before lunch time all week. The doctor has also prescribed Gaviscon liquid to ease the pains I get in my chest. He thinks that they may be caused by excess acid but the Helibactor test was negative. Apparently this is quite a common occurrence with M.E. but he has referred me to the hospital for yet more tests. This time for a camera investigation. I think he is just ruling out the possibility of any other condition causing it. Better safe than sorry I suppose. If I haven't heard anything from the hospital in 4 weeks I have to let him know and he will get on to them.
I still have to get to the CAB about an appeal for DLA. Wednesday is the earliest I will be able to go..and just hope that there is someone there that can help with it. I'm not holding my breath that I will be awarded DLA.....the forms are a minefield open to all sorts or interpretation.
I still have to get to the CAB about an appeal for DLA. Wednesday is the earliest I will be able to go..and just hope that there is someone there that can help with it. I'm not holding my breath that I will be awarded DLA.....the forms are a minefield open to all sorts or interpretation.
Monday, 21 January 2008
Endless nights....
Why am I sat here at my computer at almost 4.30 in the morning? I should be in bed getting precious sleep. The answer is simple.....I am in so much pain sleep is impossible. Saturday night saw me finally getting a couple of hours at 7am. I usually go to my eldest son and daughter-in-laws for Sunday lunch. Suffice to say I didn't make it. The pain I have been getting since carrying home a ream of computer paper has steadily got worse. It's now at the point where sitting or standing for very long is extremely uncomfortable because of pain in my lower back, shoulders and neck...I feel physically nauseous. My head is pounding and the tinnitus is almost unbearable. I can hardly focus my mind on anything. I went for a short walk on Sunday afternoon in the hope that some exercise and fresh air would help. It didn't. I've run out of painkillers...hence the reason I am on here. The time for the surgery to open can't come quick enough for me. Why do the hours go so slowly when you are in pain? The painkillers I take are not on repeat prescription so I am hoping that I can get past a receptionist and speak to one of the doctors and get a prescription. Usually you have to order them 48 hours before. Failing that it will have to be a doctors appointment.....goodness knows when I will get one....could be up to a week!! I definitely can't wait that long....I will certainly go mad.
Friday, 18 January 2008
Can it get any worse?.....
I'm in pain...and I want it to go away. It's so mind numbing I'm finding it hard to concentrate at all. It started last week with a twinge.....my own fault really. A ream of copier paper at half price was too good an opportunity to miss. Carrying it home was the problem. The pain started as a twinge in my shoulder blade. Thought it would ease with a warm bath and rest. It has now spread to my shoulder, arm and neck. I'm fast running out of painkillers which don't seem to be helping at all.
On top of this I have 3 Birthday cards which I hoped to get done in the next week....2 of them are needed by the weekend. I have everything I need to do them....images on my computer and new stamps which arrived yesterday...yay!...except black ink!!! I replaced a black cartridge in my printer fairly recently and have not used it much. It's printing with streaks and alternating between light and dark...so annoying! I have followed the manufacturers instructions to clean the nozzles but it's not working. I'm just wasting paper trying. I will just have to try and be patient until next week when I can purchase a new one. Can it get any worse I ask you? On second thoughts...don't answer that!!
Hope your start to the new year has been better than mine.
On top of this I have 3 Birthday cards which I hoped to get done in the next week....2 of them are needed by the weekend. I have everything I need to do them....images on my computer and new stamps which arrived yesterday...yay!...except black ink!!! I replaced a black cartridge in my printer fairly recently and have not used it much. It's printing with streaks and alternating between light and dark...so annoying! I have followed the manufacturers instructions to clean the nozzles but it's not working. I'm just wasting paper trying. I will just have to try and be patient until next week when I can purchase a new one. Can it get any worse I ask you? On second thoughts...don't answer that!!
Hope your start to the new year has been better than mine.
Wednesday, 16 January 2008
Aaaarrrggggh!!!!!...
It's only January and already the year is not turning out too well for me.
Still haven't heard from the the surveyor about my windows...I'm feeling like I've smacked into a brick wall physically.....got a decision from the DWP, my claim for DLA has been rejected..again..the decision was based on a medical I had 2 years ago!..and my son Karl has broken his hand. No great catastrophe except it his his right hand and he is right handed.He went to the skate park Monday night and came back with a very bruised and swollen hand. He went to casualty on Tuesday morning and came home with a cast on. Been back this afternoon after work...(yes he did go into work..no work no pay)....they've taken the cast off and put him a splint on. He's in a lot of pain though so I've told him he has to go back in the morning. Can it get any worse at the moment?
To be fair it's not all doom and gloom though. Will give the housing association another ring..see where that gets me. The reason for my increasing pain is due to the fact that I had a particularly busy week. Last Monday was an appointment at the DWP for a "work focused interview". It went ok...I think...and have to go back for another 5 appointments. I don't know how they think it will help me though. She did give my ego a boost though by querying my date of birth. She put me 10 years younger than I am.
Tuesday had to be up at the crack of dawn for a new back door being fitted. At least it doesn't rain in now and it closes properly.
Wednesday saw me shopping with son and daughter-in-law. It was bitterly cold but I had some Christmas money just crying out to be spent on craft goodies...and the sales were on!!! Two new stamps, medallion ones....one of them is the Marie Curie daffodil stamp..gorgeous!.. a corner punch, lovely holographic card, computer paper and basic card stock. Have also ordered a set of stamps online....they should arrive in the next couple of days.
Thursday was food shopping day...I hate food shopping.
Friday I wasn't fit for anything, was totally wiped out and am only just starting to recover. This morning was hoping for a lie in but the painter turned up to paint my newly installed door.
I've not made any plans for the rest of the week. I need to try and rest and gather up some energy from somewhere.
And finally....I've had a makeover.....do you like it? I do. Let me know....I know you're out there....
Still haven't heard from the the surveyor about my windows...I'm feeling like I've smacked into a brick wall physically.....got a decision from the DWP, my claim for DLA has been rejected..again..the decision was based on a medical I had 2 years ago!..and my son Karl has broken his hand. No great catastrophe except it his his right hand and he is right handed.He went to the skate park Monday night and came back with a very bruised and swollen hand. He went to casualty on Tuesday morning and came home with a cast on. Been back this afternoon after work...(yes he did go into work..no work no pay)....they've taken the cast off and put him a splint on. He's in a lot of pain though so I've told him he has to go back in the morning. Can it get any worse at the moment?
To be fair it's not all doom and gloom though. Will give the housing association another ring..see where that gets me. The reason for my increasing pain is due to the fact that I had a particularly busy week. Last Monday was an appointment at the DWP for a "work focused interview". It went ok...I think...and have to go back for another 5 appointments. I don't know how they think it will help me though. She did give my ego a boost though by querying my date of birth. She put me 10 years younger than I am.
Tuesday had to be up at the crack of dawn for a new back door being fitted. At least it doesn't rain in now and it closes properly.
Wednesday saw me shopping with son and daughter-in-law. It was bitterly cold but I had some Christmas money just crying out to be spent on craft goodies...and the sales were on!!! Two new stamps, medallion ones....one of them is the Marie Curie daffodil stamp..gorgeous!.. a corner punch, lovely holographic card, computer paper and basic card stock. Have also ordered a set of stamps online....they should arrive in the next couple of days.
Thursday was food shopping day...I hate food shopping.
Friday I wasn't fit for anything, was totally wiped out and am only just starting to recover. This morning was hoping for a lie in but the painter turned up to paint my newly installed door.
I've not made any plans for the rest of the week. I need to try and rest and gather up some energy from somewhere.
And finally....I've had a makeover.....do you like it? I do. Let me know....I know you're out there....
Saturday, 5 January 2008
New year...
Another year over. What the new year will bring I don't know. All I do know that I will be trying my hardest to try and get my life on a more even keel health wise.
My test for the Helicobacter pylori bacteria infection turned out to be negative. So where do I go from here......back to the doctor or carry on with the tablets and hope that the symptoms subside? Another wait and see scenario I think.
Christmas was a very enjoyable and relaxing time for me. Christmas day spent at home with my 2 youngest and boxing day at eldest son's. New year's eve saw me at eldest son's again and came home New years day..my 2 youngest were off out doing their own thing.
I still haven't had any results from the housing association concerning the matter of my windows. A surveyor is supposed to be coming to look at the damage but so far no sign. I will give the benefit of the doubt and assume that the delay is due to the holiday period. I have had some good news though. I am having a new back door fitted. The present one is rotted at the bottom and lets in the rain. I know it won't be a UPVC one like the front...that will be fitted when the refurbishment of the house is done...but at least it will be more secure and dry.
Monday I have an appointment at the DWP for a "work focused interview." Failure to attend this could lead to my benefit being stopped. Now I know that the government is supposed to be clamping down and checking that claimants are genuine.....but for heaven's sake...do they think that I actually prefer to live on a third of what I was earning and not having the lifestyle or social life that I used to enjoy? I did query this appointment over the phone and was told that the name is misleading. The interview...apparently..... is to help me manage my disability and possibly train to be able to find suitable work.....eh????? The mind boggles!!
May I take this opportunity to wish you all, wherever you may be, a peaceful, happy and healthy new year.
My test for the Helicobacter pylori bacteria infection turned out to be negative. So where do I go from here......back to the doctor or carry on with the tablets and hope that the symptoms subside? Another wait and see scenario I think.
Christmas was a very enjoyable and relaxing time for me. Christmas day spent at home with my 2 youngest and boxing day at eldest son's. New year's eve saw me at eldest son's again and came home New years day..my 2 youngest were off out doing their own thing.
I still haven't had any results from the housing association concerning the matter of my windows. A surveyor is supposed to be coming to look at the damage but so far no sign. I will give the benefit of the doubt and assume that the delay is due to the holiday period. I have had some good news though. I am having a new back door fitted. The present one is rotted at the bottom and lets in the rain. I know it won't be a UPVC one like the front...that will be fitted when the refurbishment of the house is done...but at least it will be more secure and dry.
Monday I have an appointment at the DWP for a "work focused interview." Failure to attend this could lead to my benefit being stopped. Now I know that the government is supposed to be clamping down and checking that claimants are genuine.....but for heaven's sake...do they think that I actually prefer to live on a third of what I was earning and not having the lifestyle or social life that I used to enjoy? I did query this appointment over the phone and was told that the name is misleading. The interview...apparently..... is to help me manage my disability and possibly train to be able to find suitable work.....eh????? The mind boggles!!
May I take this opportunity to wish you all, wherever you may be, a peaceful, happy and healthy new year.
Saturday, 15 December 2007
Murphy's law
I didn't want to get out of bed this morning and perhaps I shouldn't have. What could go wrong today has gone wrong. It started with the Christmas tree lights. They were working fine Thursday night when I put the tree up. Annoying..but easily fixed. Checked the fuse in the plug then the fuse bulb..that was the problem. Had a spare one, so easily fixed. Then the heating, or rather the hot water. The weather has turned very cold so I have had the heating on today. The hot water isn't working though when the heating is on. Probably a faulty valve. Rang the repair department at the housing association and was told that someone would contact me to make an appointment for this. Will be Monday now as repairs are not done at weekends except in an emergency. I can cope with that. What I can't cope with is the incessant phone calls I have been getting today...every 10 minutes or so. They have been from an automated service with no dialogue, just an annoying beep, beep, beep, beep,beep, Aaaarrgghhhh!!!!! The phone has been unplugged until the morning.
On a more positive note I have managed to get all my Christmas cards finished. Just got to address and post them. I am tempted to pack away my Christmas craft goodies, but if I do that you can guarantee that someone will get in touch wanting a card made.
Just got a couple of pressies to buy and then that will be my shopping finished...except the food of course. Not too much of that to do....the freezer is fairly well stocked and it will only be me and my 2 youngest boys for Christmas day. They are both working Christmas eve and boxing day.
On a more positive note I have managed to get all my Christmas cards finished. Just got to address and post them. I am tempted to pack away my Christmas craft goodies, but if I do that you can guarantee that someone will get in touch wanting a card made.
Just got a couple of pressies to buy and then that will be my shopping finished...except the food of course. Not too much of that to do....the freezer is fairly well stocked and it will only be me and my 2 youngest boys for Christmas day. They are both working Christmas eve and boxing day.
Wednesday, 12 December 2007
The saga continues....
My health continues to get worse. Some of it is probably due to the cold weather. My muscle and joint pains seem to be increasing, and my fingers and feet are swelling more often. I went to see the doctor again...not the one I have been seeing.....she wasn't available. I have now had to stop the latest medication in order to be tested for a stomach bug, which apparently is very common, most people don't know they have it as it doesn't usually cause any problems. This bug could be causing excess acid which might account for the chest pains, so the doctor says. I go for a breath test at my local chemist at 9.30 next Monday..... 9.30!!!!!...I don't do mornings! It's not too bad though and might solve the problem. I can't have anything to eat and can only have water to drink for 6 hours before...hence the time. The test seems quite simple.....I tablet....then breathe into 2 tubes....wait 15 minutes then breathe into tubes again. If it showing that I have the bug...... a course of 2 types of antibiotics....problem solved. Now I don't mean to sound pessimistic but......the doctor has has given me more of the medication and put them on repeat for me to be taken if and when I need them. Another case of wait and see.
The saga of the replacement windows continues. The manager has been out to see me and replaced the broken one, and given an apology for the damage done to my garden. The housing association have not been so forthcoming. After a few missed calls and left messages i finally managed to talk to the refurbishment manager. She is sending a surveyor to look at the work. The thing that has really got me spitting feathers is the fact that the window company told me that the cladding over the old wooden cladding was a temporary measure as they would be removed and the walls re plastered round the windows when the refurbishment takes place. The housing association has today said that this is not the case..the windows are staying as they are!!! I am totally gobsmacked by this. It sounds as though it is a case of passing the buck. as you can probably imagine..I AM NOT A HAPPY BUNNY!!!!! I am going to contact the window company and get.... in writing.....why the windows have been done as they are. If I get no satisfaction from housing association on the matter then I will be kicking up an almighty fuss...local papers and all!!!! OK... rant over for now, and I make no apologies for becoming a grumpy old woman!
The saga of the replacement windows continues. The manager has been out to see me and replaced the broken one, and given an apology for the damage done to my garden. The housing association have not been so forthcoming. After a few missed calls and left messages i finally managed to talk to the refurbishment manager. She is sending a surveyor to look at the work. The thing that has really got me spitting feathers is the fact that the window company told me that the cladding over the old wooden cladding was a temporary measure as they would be removed and the walls re plastered round the windows when the refurbishment takes place. The housing association has today said that this is not the case..the windows are staying as they are!!! I am totally gobsmacked by this. It sounds as though it is a case of passing the buck. as you can probably imagine..I AM NOT A HAPPY BUNNY!!!!! I am going to contact the window company and get.... in writing.....why the windows have been done as they are. If I get no satisfaction from housing association on the matter then I will be kicking up an almighty fuss...local papers and all!!!! OK... rant over for now, and I make no apologies for becoming a grumpy old woman!
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